Publications
NORSE / FIRES Bibliography
A curated list of published case series, case reports and other publications on NORSE and FIRES, 2001–2026.
470
Publications
151
Case series
188
Case reports
131
Other publications
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Other includes reviews, pathophysiology studies, definitions, guidelines, letters and commentaries.
470 publications
2026
40 articles- PMID 41277767Case seriesPeng et al.
Factors associated with long‑term outcomes in people with new‑onset refractory epilepticus.
- PMID 40847775Case seriesLevi Strauss et al.
Extreme type of new‑onset refractory status epilepticus with stimulus‑induced seizures.
- PMID 40944696Case seriesGruen et al.
Quality of life over time after new‑onset refractory status epilepticus.
- PMID 41401655Case seriesMurugesu et al.
Tocilizumab for super‑refractory status epilepticus in children with FIRES: case series.
- PMID 41561677Case seriesLim et al.
New‑onset refractory status epilepticus associated with Sjögren's disease.
- PMID 41633319Case seriesYan et al.
Efficacy differences between tocilizumab and ketogenic diet during acute phase of FIRES in children.
- PMID 41679100Case seriesChidambaram et al.
Pediatric new‑onset super‑refractory status epilepticus: potential of timely immunotherapy in a resource‑limited PICU.
- PMID 41767518Case seriesLi et al.
Metabolism‑corrected propofol exposure intensity and long‑term IQ in pediatric FIRES: retrospective cohort study.
- PMID 41875755Case seriesYoo et al.
Vagus nerve stimulation as adjunct therapy for super‑refractory status epilepticus including NORSE.
- PMID 42094697Case seriesDeng et al.
Clinical outcomes of tocilizumab usage in cryptogenic FIRES at acute and chronic phase.
- PMID 41498863Case seriesJayalakshmi et al.
Clinical characteristics, etiology, and outcome of NORSE in adults.
- PMID 42184585Case seriesAbe et al.
Longitudinal changes in brain volume, cognitive function and seizure outcomes in cryptogenic NORSE.
- PMID 42241938Case seriesTian et al.
The electroencephalographic patterns in the acute phase of febrile infection related epilepsy syndrome in children.
- PMID 42317346Case seriesPang et al.
Case report: tocilizumab in pediatric febrile infection-related epilepsy syndrome.
- PMID 42537571Case seriesSoler Wenglein et al.
Febrile infection-related epilepsy syndrome (FIRES): duration of therapeutic coma and treatment intensity correlate with poorer functional outcome.
- PMID 42446501Case seriesHawksworth et al.
New onset refractory status epilepticus (NORSE) versus refractory status epilepticus not meeting NORSE criteria: A comparative clinical and electroencephalography-based study.
- PMID 42470032Case seriesLin et al.
Multidisciplinary management and nursing care for pediatric patients with febrile infection-related epilepsy syndrome in the acute phase: A case series.
- PMID 42568019Case seriesCruz-Perez et al.
Management Challenges and Clinical Characteristics of Refractory Status Epilepticus in Mexico: A 102 Patient Retrospective Cohort Study.
- PMID 42619283Case seriesKhan et al.
Claustrum Sign in Febrile Infection-Related Epilepsy Syndrome.
- PMID 42641489Case seriesHan et al.
Electroencephalographic and neuroimaging prognosticators in pediatric FIRES with claustrum lesions: A 21-case retrospective study.
- PMID 42665853Case seriesJunemann et al.
Clinical outcomes and unmet therapeutic needs in new-onset refractory status epilepticus: evidence from a retrospective cohort.
- PMID 42696242Case seriesLiu et al.
Efficacy and safety of tocilizumab in the chronic phase of febrile infection-related epilepsy syndrome: a retrospective cohort study.
- PMID 42843215Case seriesShivarthi et al.
Initial experience of bortezomib in cryptogenic new-onset refractory status epilepticus: a case series.
- PMID 41502299Case reportNico et al.
Rapid recovery after intrathecal dexamethasone in FIRES.
- PMID 41524901Case reportTan et al.
FIRES in adults: case report and review of factors associated with survival.
- PMID 41557907Case reportMcLaughlin et al.
Use of electroconvulsive therapy in NORSE: case report and systematic review.
- PMID 41637924Case reportChan et al.
Secondary hemophagocytic lymphohistiocytosis concurrent with FIRES in a child.
- PMID 41697173Case reportMuccioli et al.
Extreme cryptogenic NORSE/FIRES: evidence of profound neuroinflammation and neuronal injury.
- PMID 42022976Case reportMirian et al.
Claustrum sign in Hashimoto encephalopathy presenting with NORSE.
- PMID 42100917Case reportBildik et al.
Neuroimaging spectrum of immune‑mediated CNS disorders in children following SARS‑CoV‑2 infection — case series component.
- PMID 42367793Case reportZhang et al.
Anakinra for tocilizumab-refractory febrile infection-related epilepsy syndrome with normal IL-1β levels: a case report.
- PMID 42404327Case reportOcakdan et al.
Super-refractory Status Epilepticus in Febrile Infection-Related Epilepsy Syndrome Triggered by Influenza A: A Pediatric Case Report.
- PMID 42494178Case reportAlamri et al.
Febrile infection-related epilepsy syndrome (FIRES): Long-term challenges of phenobarbital management and drug-resistant epilepsy.
- PMID 42614298Case reportChou et al.
Case Report: Anti-GABA-B receptor encephalitis with refractory status epilepticus and favorable short-term recovery.
- PMID 42824462Case reportYang et al.
Febrile infection-related epilepsy syndrome with claustrum sign following a human rhinovirus-positive respiratory illness in an adult: a case report.
- doi.org/10.1111/cen3.70054Case reportGonzalez et al.
Successful Use of Tocilizumab in a 2-Year-Old Girl With Probable C-NORSE/FIRES: A Case Report.
- PMID 42847124Case reportKumar Tilangi et al.
New-onset refractory status epilepticus with a hyperferritinemic hyperinflammatory phenotype in Kyasanur Forest Disease.
- PMID 42836786Case reportShide-Moriguchi et al.
Probable sudden unexpected death in epilepsy in chronic febrile infection-related epilepsy syndrome survivors: Silent threat after the storm.
- PMID 41265024OtherSuri-Baez et al.
Beyond Anakinra and Tocilizumab: Additional Adjunctive Therapies in Pediatric NORSE and FIRES - A Narrative Review.
- PMID 41697646OtherHanin et al.
Exploring pathways leading to drug-resistant epilepsy for patients with cryptogenic new onset refractory status epilepticus.
This bibliography supports our NORSE Evidence Database.
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